My computer had been sick. It had been super slow, and it got to a point I couldn't tell if it was super super slow or freezing. I finally had a opportunity to take it to our friend who knows a lot about computer.
The diagnose was more likely that the hard drive was damaged. I thought it might be the end of my computer's life, but the computer doctor said he could try to put a new hard drive.The hard drive was donated by the computer doctor who used to be a CML patient -how ironic!
My computer had a hard drive transplant, and now it's working like a brand new computer!
We love transplant.
Please resister be a bone marrow donor!
http://marrow.org/Home.aspx
Love,
Mayumi
Thursday, April 26, 2012
Tuesday, February 21, 2012
Just a cold or NOT just a cold...
The Lazymaneosis turned out to be a cold-shame on me for giving him a wrong diagnose! Tommy started to have a runny nose, and we thought he got it from Jason. So, we didn't do much about it. A few days later, I started have a runny nose...thinking it was not from Jason's cold! By then, Jason's cough got really REALLY bad. Tommy and I got over the cough in a few days, but Jason dragged his for a while.
He just doesn't have enough immune system to fight over a common cold. In fact, he still has the same Rhino virus since October!
Many people ask us when he can be back to normal (go back to work, eat normal foods, be in a crowd, etc) since he passed the big Day 100. The answer is still not for a while. His blood count is normal for BMT patient, but NOT normal compare to me-healthy person.
When we go to our weekly clinic, the nurse gives us blood work summary. To be honest with you, I can't understand more than half of what it means. I asked PA Pam how to read these codes and numbers. She gave me little more detailed papers, and told me to study for the next appointment - she is going to quiz me!
I'm hoping one of these days, I will post his blood counts from the time of transplant to the recent blood work. I know some of them are dramatic (from 0 to thousands).
His cough is slowly going away. He started sleep little better. His hair is not growing yet, but his mustache is trying to come back and they are gray!
Thanks for your comments. I love hearing from you...kind words and "update your damn blog!".
Love,
Mayumi
He just doesn't have enough immune system to fight over a common cold. In fact, he still has the same Rhino virus since October!
Many people ask us when he can be back to normal (go back to work, eat normal foods, be in a crowd, etc) since he passed the big Day 100. The answer is still not for a while. His blood count is normal for BMT patient, but NOT normal compare to me-healthy person.
When we go to our weekly clinic, the nurse gives us blood work summary. To be honest with you, I can't understand more than half of what it means. I asked PA Pam how to read these codes and numbers. She gave me little more detailed papers, and told me to study for the next appointment - she is going to quiz me!
I'm hoping one of these days, I will post his blood counts from the time of transplant to the recent blood work. I know some of them are dramatic (from 0 to thousands).
His cough is slowly going away. He started sleep little better. His hair is not growing yet, but his mustache is trying to come back and they are gray!
Thanks for your comments. I love hearing from you...kind words and "update your damn blog!".
Love,
Mayumi
Monday, February 13, 2012
More donor!
I would like to add two more to my donor register count -now total 6! Friends of ours, they are sisters, lost their uncle last year because of cancer.
We feel extremely fortunate that Jason was able to find a perfect match. Many people loose their battle while they are waiting for their match. Sometimes people have to take a chance to receive not so perfect match marrow, and have difficult time to recover or even death.
There are a lot of opportunities and different ways for us to make difference in someone else's life. I am glad that I registered as a borne marrow donor; maybe I could save or give hope to someone.
You can register at the website below. The process is easy. After answer some questions online, they will mail you a kit (cotton swabs and return envelops), and simply you send your sample (tissues inside of your mouth) back to the donor register organization.
http://marrow.org/Home.aspx
Donor count 6!
Thanks for your help and support.
Love,
Mayumi
We feel extremely fortunate that Jason was able to find a perfect match. Many people loose their battle while they are waiting for their match. Sometimes people have to take a chance to receive not so perfect match marrow, and have difficult time to recover or even death.
There are a lot of opportunities and different ways for us to make difference in someone else's life. I am glad that I registered as a borne marrow donor; maybe I could save or give hope to someone.
You can register at the website below. The process is easy. After answer some questions online, they will mail you a kit (cotton swabs and return envelops), and simply you send your sample (tissues inside of your mouth) back to the donor register organization.
http://marrow.org/Home.aspx
Donor count 6!
Thanks for your help and support.
Love,
Mayumi
Sunday, February 5, 2012
Lazymaneosis
Jason's condition has not changed much for a while. He is tired and sleeps a lot.
We've discussed about our concerns at our weekly doctor's visit, but the doctor has not been too worried. His blood work is great, no other symptoms. From doctor's view, Jason is still doing great.
Well, from my point of view... I don't think he is doing too well. The first couple of weeks since he started to feel exhausted, I felt bad. I was worried that something bad was happening. I was making sure he was taking his temperature daily (twice), eating well, sleeping good, no chores, etc. No matter what he ate, how much he slept, he was tired and grumpy.
After a few weeks of this, I finally figured out his problem... "Lazymaneosis" (in Japanese ぐうたら病）。You must think I am the meanest wife ever. Her husband just had a bone marrow transplant 4 months ago, and calling him lazy!
I told Jason " I wonder if you are having 'Lazymaneosis'", and he started to laugh, and he thought I may be right (I'm always right!). Since then, he has been trying a little harder. He is down to one nap a day. He does a little thing every day; goes for a walk or takes Tommy to preschool or goes lunch with me. Just these little things exhaust him, but I think it's helping him-he is in better mood.
Lazymaneosis is in treatment, but his fatigue & physical weakness continue. The doctor encourage him to continue daily exercises (walk, yoga, etc) so he can get his strength back. He is in the right track to be "normal" in the near future.
Thanks for your prayers and kind words.
Love,
Mayumi
We've discussed about our concerns at our weekly doctor's visit, but the doctor has not been too worried. His blood work is great, no other symptoms. From doctor's view, Jason is still doing great.
Well, from my point of view... I don't think he is doing too well. The first couple of weeks since he started to feel exhausted, I felt bad. I was worried that something bad was happening. I was making sure he was taking his temperature daily (twice), eating well, sleeping good, no chores, etc. No matter what he ate, how much he slept, he was tired and grumpy.
After a few weeks of this, I finally figured out his problem... "Lazymaneosis" (in Japanese ぐうたら病）。You must think I am the meanest wife ever. Her husband just had a bone marrow transplant 4 months ago, and calling him lazy!
I told Jason " I wonder if you are having 'Lazymaneosis'", and he started to laugh, and he thought I may be right (I'm always right!). Since then, he has been trying a little harder. He is down to one nap a day. He does a little thing every day; goes for a walk or takes Tommy to preschool or goes lunch with me. Just these little things exhaust him, but I think it's helping him-he is in better mood.
Lazymaneosis is in treatment, but his fatigue & physical weakness continue. The doctor encourage him to continue daily exercises (walk, yoga, etc) so he can get his strength back. He is in the right track to be "normal" in the near future.
Thanks for your prayers and kind words.
Love,
Mayumi
Sunday, January 29, 2012
Tired, sleepy... Punky?
Hickman line is out, and we had big day 100. Things were going well.
Jason has been really tired for last two weeks. It seems like he can not get enough sleep, not enough energy (makes him grumpy), but he doesn't have any other problems.
We had a meeting with our new oncologist last week, and told him about it. The doctor said it is normal to have ups and downs. As long as he doesn't have any problems; fever, loss of appetite, skin rash, etc, we should not be too worried about it.
He wakes up 10am, and takes a nap in the afternoon, and still goes to bed by 10pm.
Hope he will get his energy back soon (so he can help me around the house!).
Love,
Mayumi
Jason has been really tired for last two weeks. It seems like he can not get enough sleep, not enough energy (makes him grumpy), but he doesn't have any other problems.
We had a meeting with our new oncologist last week, and told him about it. The doctor said it is normal to have ups and downs. As long as he doesn't have any problems; fever, loss of appetite, skin rash, etc, we should not be too worried about it.
He wakes up 10am, and takes a nap in the afternoon, and still goes to bed by 10pm.
Hope he will get his energy back soon (so he can help me around the house!).
Love,
Mayumi
Sunday, January 22, 2012
Donor register No. 4!
My good friend Shino registered as a bone marrow donor! Thanks Shino!!!
She went to the website (below) and it took a little long to go through all questions to get registered, but she did. Also, she said it was free.
Hope you find a time and courage to register as a bone marrow donor!
Let me know when you do it, so I can add to my counter :)
http://marrow.org/Home.aspx
It is getting closer to my goal- 100! (right?!)
Love,
Mayumi
She went to the website (below) and it took a little long to go through all questions to get registered, but she did. Also, she said it was free.
Hope you find a time and courage to register as a bone marrow donor!
Let me know when you do it, so I can add to my counter :)
http://marrow.org/Home.aspx
It is getting closer to my goal- 100! (right?!)
Love,
Mayumi
Friday, January 20, 2012
Hickman line - Out (part 2)
We arrived at the SCCA with excitement. I told Ty to video tape the whole scene with his camera, and I brought mine to take some pictures.
The usual exam room was crowed with four of us. A Canadian PA came in and did usual check up on Jason. (She had such a cute accent; east coast/French-ish, with "eh" on almost every end of the sentence. I had to ask her where she was from, and she said she was from Canada.) She said that the line was a little bit different from the ones she was used to in Canada "eh", so she was going to have someone from SCCA to pull it out "eh".
So, another PA came in - a cute Indian PA; not native American Indians, but from India, dark skin, beautiful big black eyes with long eye lushes. Her english was perfect though. I had to ask again where she was from. There are large Indian population in Sammamish, and usually they have quite strong accent. I think their accent is... soothing... like Yoga. Anyway, she was from Oregon.
She started with some explanations; she had done this procedure before- many times, sometimes it gets hard to pull out or break, in that case, Jason would be sent to operation immediately, etc. She took out the dressing (a tape securing the line), cleaned the line and skin, and snipped off some stitches that was holding the line and the skin.
The Indian PA tried several times to see if it would start moving. She finally gave up, and said she would bring someone else to try for the last time before they send Jason down to operation. She said he was an experienced and strong doctor. The word "STRONG" scared Jason; he didn't look too happy. It was hurting him by the little Indian lady doctor, and now a strong male doctor was really yank it out.
As soon as the male doctor came in, Jason's smile came back. The doctor was one of the favorite doctors he had while he was at UW Medical Center. I had never met him, but I heard about him a lot; the Burger Master doctor. There is a burger restaurant in Seattle called Burger Master, and the doc was highly recommending Jason to go when he got better.
The exam room was REALLY crowded. The Canadian PA, Indian/Oregonian PA, the Burger Master doctor, and us. They did quick update, and the Burger Master doctor told me to come behind him to get better video shot of the main event. Also, he told Jason to turn his head to side, take a deep breath, and quick few yank... the line started to move! It was like a magician pulling a string of flags out of his finger. Within a few second, the whole line came out, and the Burger Master doctor put his hands on Jason's chest where the line was coming out to put pressure on. A few minutes later, they put the band-aid on, and the doc told us that we could go Burger Master anytime because Jason had been recovering really well.
Also, the Burger Master doctor asked us if we wanted to take the line home. Of course "yes". He put it in a urine sample bottle, and gave it to Ty.
Well, I tried to upload the video, but it didn't work. I'll try again later.
Thanks for reading the blog.
Love,
Mayumi
The usual exam room was crowed with four of us. A Canadian PA came in and did usual check up on Jason. (She had such a cute accent; east coast/French-ish, with "eh" on almost every end of the sentence. I had to ask her where she was from, and she said she was from Canada.) She said that the line was a little bit different from the ones she was used to in Canada "eh", so she was going to have someone from SCCA to pull it out "eh".
So, another PA came in - a cute Indian PA; not native American Indians, but from India, dark skin, beautiful big black eyes with long eye lushes. Her english was perfect though. I had to ask again where she was from. There are large Indian population in Sammamish, and usually they have quite strong accent. I think their accent is... soothing... like Yoga. Anyway, she was from Oregon.
She started with some explanations; she had done this procedure before- many times, sometimes it gets hard to pull out or break, in that case, Jason would be sent to operation immediately, etc. She took out the dressing (a tape securing the line), cleaned the line and skin, and snipped off some stitches that was holding the line and the skin.
The Indian PA tried several times to see if it would start moving. She finally gave up, and said she would bring someone else to try for the last time before they send Jason down to operation. She said he was an experienced and strong doctor. The word "STRONG" scared Jason; he didn't look too happy. It was hurting him by the little Indian lady doctor, and now a strong male doctor was really yank it out.
As soon as the male doctor came in, Jason's smile came back. The doctor was one of the favorite doctors he had while he was at UW Medical Center. I had never met him, but I heard about him a lot; the Burger Master doctor. There is a burger restaurant in Seattle called Burger Master, and the doc was highly recommending Jason to go when he got better.
The exam room was REALLY crowded. The Canadian PA, Indian/Oregonian PA, the Burger Master doctor, and us. They did quick update, and the Burger Master doctor told me to come behind him to get better video shot of the main event. Also, he told Jason to turn his head to side, take a deep breath, and quick few yank... the line started to move! It was like a magician pulling a string of flags out of his finger. Within a few second, the whole line came out, and the Burger Master doctor put his hands on Jason's chest where the line was coming out to put pressure on. A few minutes later, they put the band-aid on, and the doc told us that we could go Burger Master anytime because Jason had been recovering really well.
Also, the Burger Master doctor asked us if we wanted to take the line home. Of course "yes". He put it in a urine sample bottle, and gave it to Ty.
Well, I tried to upload the video, but it didn't work. I'll try again later.
Thanks for reading the blog.
Love,
Mayumi
Subscribe to:
Posts (Atom)
